Portal de San Javier
www.portaldesanjavier.com
Residence Fundamifp Foundation National Pro-disabled National Police, located in Santiago de la Ribera host next Friday, May 6 its V Training days which this year will be dedicated to rare diseases.
Councillor for Social Services Estíbaliz Masegosa attended today's presentation of the conference held at the residence of Fundamifp along its director Maribel Martinez and the social worker and coordinator of the same Gema Blazquez.
Blazquez said that the conference will be attended by the president of the Spanish Federation of rare diseases (ERDF), Latin American Alliance of rare diseases (Aliber) and the Association of rare diseases (DGENES), Juan Carrion Tudela to deliver the framework conference " general aspects of rare diseases, FEDER, the strength of associations "at 10: 15h.
after the opening by the authorities.
The second talk, at 11: 05h.
It will focus on the psychological aspects of rare diseases and resources for people affected by rare diseases in the Region of Murcia, with professionals Multidisciplinary Centre for comprehensive care to individuals and families with rare diseases "Celia Carrion Perez de Tudela".
From 12:00 to 13: 00h voice will be two particular cases and personal family experience, first with Rafael Moreno Gomez, president of the "RafaPuede-Rafael Moreno Vidal" Foundation, and later with Diana Carolina Correa with the testimony of the experience lived with her daughter, Gema Blazquez added.
The director general of Persons with Disabilities of IMAS, Ana Guijarro, the town councilor of Social Services of San Javier, Estíbaliz Masegosa and Fundamifp manager, Andrés Torquemada decommission the Day.
Estíbaliz Masegosa showed institutional support for this initiative residence Fundamifp, with which the City has a collaboration agreement and thanked those responsible to addressing rare diseases, an issue "with which we contribute our tiny grain of sand in social awareness of the need for research into these diseases in the Region of Murcia affect 85,000 people in Spain and 3 million, "said the director of the Center.
The conference is aimed at anyone interested in the subject that can register for free until May 4 through residencia@fundamifp.org and on the phone 968 185 933.
Fundamifp Residence Foundation Pro-disabled National Police, turns 24 years in the municipality of San Javier as respite care center and leisure for people with disabilities.
For 10 years they have with the IMAS contract services which currently serves 31 disabled severe in residence in the coming days will reach 39 thanks to the recent expansion of places by the Ministry, while maintaining the program respite weekend and leisure programs, such as the Police Foundation.
Source: Ayuntamiento de San Javier
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